Family support

Rare diseases do not only affect individuals - they affect families, friendships and communities.

For people living with CAPS and other rare autoinflammatory diseases, support from family members, clinicians, researchers, and patients advocacy groups can make an enormous difference.

When conditions are rare and often invisible, community matters. It creates connections, understanding, and hope!

Every conversation, every shared story, and every act of support matters.

Thank you to my family to support “1000km for CAPS” and share a few km’s together!Read more